Have you checked out the Yahoo torticollis group? They have lots of active users and info in the archives.
Natasha mom to Kyler 7 mo Hanger band
Date: Wed, 16 Jan 2008 21:56:17 -0500
Subject: RE: [Plagio] Re: Outgrown helmet
Thanks for your input. The situation is that he has been wearing a full helmet, not the band, for four straight months 23/7. It was just that last month that he had to wear the collar during the day and the helmet at night. He is now 13 months , outgrew his helmet by 4mm, and I can see a difference on both sides. Since my original question last week, I visited his surgeon who told me it was more important that he focus on wearing the collar and suit rather the helmet. She assured me that just because I notice it doesn't mean that others will. "Besides, after one years of age, the head won't shape up as much as it would under a year." I hope she is right. I only want the best for him. Thanks again for your time and advice. If anyone knows about torticolis, I'd love to chat with them. He's had therapy for seven months now and I don't see any progress yet. Thanks. Good luck with yours.
Date: Mon, 14 Jan 2008 04:48:53 +0000
Subject: [Plagio] Re: Outgrown helmet
Did your son wear the helmet at night only for the entire 5 months?
If so, then it seems very plausible that you wouldn't see the
correction you desired as the head is growing and you never know when
plus you would be missing 12 or so hours of growth during the day
possibly. The band relies on growth. I think the majority of the
babies that have been banded here wore the band the majority of the
time 23/7. My son wore his band 23/7 from 7.5-9.5 months. While his
head still has a little assymetry (3mm)...it is only noticeable to me
and I am pleased with the results we got. If you aren't happy, then I
would consider another helmet. My son didn't have tort so I have no
idea if it is better to wear the band less (and longer) so he can wear
the tot collar and thera-togs suit more OR if it would be better to
wear the band 23/7 and then when he graduates wear the tot collar and
thera-togs suit while keeping him off his back as much as possible.
In my opinion, I would think wear the band 23/7 and then the tot
collar and thera-togs suit when he graduates. I would ask your PT
--- In Plagiocephaly@
yahoogroups., "anadavis26" <reggaemyway@ com ...>
> My son out grew his helmet but still is not rounded out yet. It's
> been five months now. Has this happened to anyone else out there.
> Should I except it or get another helmet? He is a little over over
> one year now. He was only wearing it at night because he wears the
> tote collar and the thera-togs suit during the day.
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